The early (and rich) bird gets the worm (and the therapy)
I absolutely cannot believe that it is February. I feel like a character in a soap opera who has been in a coma for 20 years, wakes up, and thinks they've been sleeping for 20 minutes. The last time I posted anything here was in June. We were still at Ability Camp and next thing I know its February!
Where did the time go? Mostly, I guess, into a little time sucking machine named Anabelle
Aidan's little sister, Anabelle was born on October 25, 2010, and pretty much everything from three months before she was born until three months after she was born is a big blur.
Last week, when I realized it was almost Spring, I decided to look into going back to Ability Camp for more conductive education and HBOT. Unfortunately, I found out earlier this week that the May-June class is now booked! I can't believe it! I was informed that we need to book by December to be sure that we get the class we want. Wow. December?
As much as I would love to be able to plan that far in advance, there's the little problem of paying for the therapy and the trip. I figure that the trip last year, including travel, lodging, food etc. probably cost about $15,000.00. We were able to cobble the money together due to some fortuitous events. First, an old high school friend recommended Aidan to her friend, who raises money for kids when he participates in a local triathalon. We got about one fourth of the money that way. Then, my mom and Dad settled (with my help) a car accident lawsuit, so my Dad kicked me about 5K from his settlement and my mom offered to pay for the lodging. None of this was in place until April, when we finally decided to go for it and attend Ability Camp. I guess we just got lucky that a space was still open.
This year, Aidan's summer therapy is being funded by a small legacy he received from my late grandmother in her will. We did not get this money until late December. It is really not enough to pay for camp and lodging and travel, but it was enough for me to start planning with the hope that we could come up with the rest. But oops too late. So now I am trying to figure out if we can afford to take him to a place in Florida (Conductive Education Center of Orlando ). The camp tuition for 8 weeks of conductive ed is cheaper than Ability Camp but he won't get any Hyperbaric Oxygen. The problem is that the facility is located in a suburb of Orlando, Florida and the lodging options are ex-spen-sive!
I'll be traveling with Aidan and his sisters Abigail(4 yrs)
and Anabelle (will be 9 mos) as well as my mother. My father and my husband, Brian, will also probably visit, so we need a house or apartment that is furnished and can accommodate all of us for 8 weeks. I recently learned that Orange County, FL does not allow vacation rentals. Most of the rentals are in large vacation rental communities near Disney and the theme parks, which is about 45 minutes away. Apparently, people that travel to Disney want "Luxury Accommodations" because it seems that's all they build in those parts. When I was a kid I thought the Polynesian Village was about the fanciest place on earth, with the monorail going straight through and all. Apparently, times have changed.
Although Aidan's results at Ability Camp were not as dramatic as some of the children in his camp class last summer, I think the benefit was enough to continue. So here I am again, trying to plan a therapy trip and to figure out how to pay for it. I know as Abby and Anabelle get older, planning and paying for these trips will get ever more difficult. What is a mama bird to do?
Where did the time go? Mostly, I guess, into a little time sucking machine named Anabelle
Aidan's little sister, Anabelle was born on October 25, 2010, and pretty much everything from three months before she was born until three months after she was born is a big blur.
Last week, when I realized it was almost Spring, I decided to look into going back to Ability Camp for more conductive education and HBOT. Unfortunately, I found out earlier this week that the May-June class is now booked! I can't believe it! I was informed that we need to book by December to be sure that we get the class we want. Wow. December?
As much as I would love to be able to plan that far in advance, there's the little problem of paying for the therapy and the trip. I figure that the trip last year, including travel, lodging, food etc. probably cost about $15,000.00. We were able to cobble the money together due to some fortuitous events. First, an old high school friend recommended Aidan to her friend, who raises money for kids when he participates in a local triathalon. We got about one fourth of the money that way. Then, my mom and Dad settled (with my help) a car accident lawsuit, so my Dad kicked me about 5K from his settlement and my mom offered to pay for the lodging. None of this was in place until April, when we finally decided to go for it and attend Ability Camp. I guess we just got lucky that a space was still open.
This year, Aidan's summer therapy is being funded by a small legacy he received from my late grandmother in her will. We did not get this money until late December. It is really not enough to pay for camp and lodging and travel, but it was enough for me to start planning with the hope that we could come up with the rest. But oops too late. So now I am trying to figure out if we can afford to take him to a place in Florida (Conductive Education Center of Orlando ). The camp tuition for 8 weeks of conductive ed is cheaper than Ability Camp but he won't get any Hyperbaric Oxygen. The problem is that the facility is located in a suburb of Orlando, Florida and the lodging options are ex-spen-sive!
I'll be traveling with Aidan and his sisters Abigail(4 yrs)

and Anabelle (will be 9 mos) as well as my mother. My father and my husband, Brian, will also probably visit, so we need a house or apartment that is furnished and can accommodate all of us for 8 weeks. I recently learned that Orange County, FL does not allow vacation rentals. Most of the rentals are in large vacation rental communities near Disney and the theme parks, which is about 45 minutes away. Apparently, people that travel to Disney want "Luxury Accommodations" because it seems that's all they build in those parts. When I was a kid I thought the Polynesian Village was about the fanciest place on earth, with the monorail going straight through and all. Apparently, times have changed.
Although Aidan's results at Ability Camp were not as dramatic as some of the children in his camp class last summer, I think the benefit was enough to continue. So here I am again, trying to plan a therapy trip and to figure out how to pay for it. I know as Abby and Anabelle get older, planning and paying for these trips will get ever more difficult. What is a mama bird to do?

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